At 28 weeks I was admitted to Nepean Hospital with severe foetal growth restriction and hypertension. I was told that my baby would be born early and was given steroids to help his lungs. The days past slowly when a week later at 29 weeks I had an abnormal Doppler reading, the next thing I knew I was having a caesarean. My little boy Jack was born at 10:04 am on the 2nd of July 2012 weighing a tiny 750 grams, he was rushed to NICU with respiratory distress.

The first time I saw him I didn't know what to think, all I could see were cords going everywhere and lights for jaundice. After 3 days he was off ventilation and on high flow. On day 13 we were told he had a bowel blockage and would have to be transferred to the Royal Women's Hospital over an hour away, a week later he underwent surgery for a ileostomy where his bowel was put on the outside of his stomach.

After surgery we were told they suspected Jack had Cystic Fibrosis, we were lost for words. A week later his stoma wasn't working so he needed more surgery. Things were moving so slowly and it felt like we were never going to get any good news, then finally his stoma started working and his feeds started to increase. After a month Jack's stoma started to pop out so surgeons decided to close it. Finally after two and half months at RHW we were able to be transferred back to Nepean and Jack slowly started to increase his feeds.

I noticed Jack was acting different, he's gone off his feeds and an X-ray showed he had a hernia and needed surgery. It felt like we had jumped back 10 steps! We were transferred to Westmead Children's Hospital where he had surgery on 22 October and transferred back to Nepean a few days later.

With all of our problems; surgery, weight gain, breathing issues we were seeing the light at the end of the long tunnel. Finally on the 2nd of November after 4 months we were able to go home. The next best news was a negative result for Cystic Fibrosis, it felt like a weight had been lifted off our shoulders.

It's now been over a year since my beautiful son was born the memories from NICU still replay in mind, I look at my son and know he's a miracle, a little fighter and I know we wouldn't have been put through all of it if it wasn't meant to be. Special thanks to all the nurses and doctors for all their hard work, my son wouldn't be here today if it wasn't for you.


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